A 'DESPERATE' woman is appealing for help to save her husband's life after he was hit by a terminal brain tumour.
Terra Newman has made the plea after her husband Ade, who celebrated his 49th birthday on Monday, was given the devastating news last month that the NHS could do nothing more to save him, just three months after the discovery of the cancerous tumour in his brain.
As Ade is now unable to speak or walk, Terra has, with the help of friends, launched a bid to raise money to fund specialist treatment, in a last bid to save his life.
“We are running out of time, he is declining every few days, new symptoms arising, we are getting desperate,” said Mrs Newman, who lives with Ade and their children Cove and Ever in Worcester.
“His consultant has said they can offer some palliative radiotherapy that might give him a short time more, maybe a month or two.
“Just back in April, he was fine. He was very fit and active, cycling 200 miles a week. He was an engineer.
"He just came home one day and said ‘my head feels funny’. It came out of the blue. He said ‘I can’t write anymore, isn’t this weird’.
“There were more symptoms, he reminded me of a stroke victim.
“It all happened in a four-week period in June - that was the nightmare month.
“He went to A&E twice and doctors sent him home saying he had a trapped nerve. But then he could no longer walk, he was having trouble speaking and that was when we got taken seriously.
“It went on for two months. They finally did an MRI in August, and found the large brain tumour. At that point they did not know it was cancerous, they thought it was a benign tumour. He had it removed at University Hospital Coventry, but it grew back within nine weeks to almost its original size, which was really disappointing.
“They only gave him two rounds of chemo, in September and October, before they wrote him off, and said there is not a lot they can do. In November they tried chemo, but quickly said it is not working.
“Since then I’ve done research - there is an experimental drug out there, Zanubrutinib, which supposedly can stop cancer cells growing.
“There is a proton beam as well, which gives you a higher dose of radiation that targets the tumour.”
Mrs Newman said the generosity of people has seen them raise, in just a few days, enough to cover Zanubrutinib for two months.
“It costs £5,000 a month, and we are waiting to hear back from the drug company so he can start that this week,” Mrs Newman said. “We are pushing the drugs company but nothing is happening fast enough.”
Mrs Newman said they would like CAR-T cell therapy, the trial treatment that saved the life of Worcester schoolboy Oscar Saxelby-Lee in Singapore.
Mrs Newman said: “We have been told that honestly would save his life, but we can’t afford it. You are looking at £500,000, it’s unrealistic.
“I’m hoping if we could prolong his life long enough there are going to be CART-T therapy trials next year he could have.
“It’s a race against the clock to raise as much money as we can to fund the alternative drugs, the proton beam.
“Nobody’s life should be measured by the size of their bank account. It’s frustrating – if we were rich we could have already started this.”
The 45-year-old said she was hoping Mr Newman could have Christmas at home with their children, eight-year-old daughter Ever and 12-year-old son Cove.
“I’m hoping we can have some sort of Christmas, enjoy some family time,” she said. “But a week ago he was talking and walking, within one week he is struggling to walk, struggling to get his words out. It’s very frustrating.”
Mrs Newman said she was hoping city people will rally round and support her husband of 14 years as he was born and bred in Worcester, currently lives in St Peter’s, and his grandmother was Hilda Newman who was maid to Lady Blanche of Coventry who lived at Croome Court.
There are two fundraising pages. One has been set up by family friend Helen Mason-Bedford at gofundme.com/f/the-gift-of-time-proton-beam-therapy.
The other has been set up by Ade's best friend since childhood, Lyndon Collins, who has this week started a charity bike ride to Annecy in the French Alps, a 711 miles trip. His fundraising page can be found at justgiving.com/crowdfunding/lyndon-collins.
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